Comments
Aug30
talledschick:

#ALS #icebucketchallenge #chronicillness #invisibleillness #eds #crps #raynauds #lupus #CFS #FMS #fibromyalgia #fundraising #awarness #illness #challenge #learnmore #ehlersdanlossyndrome #thinktwice

For example This Video in which a woman with dysautonomia does the ice bucket challenge, bravely, to show us what temperature change like that can do to someone with POTS. (Postural Orthostatic Tachycardia Syndrome.) In the video, the ice causes her to pass out, and have a seizure, which is pretty frightening to watch, and which her husband says happens 6-7 times per day normally. Her video very clearly raises the awareness for both ALS and POTS! (Not that I in any way advocate for the rest of us who have problems with ice buckets to cause themselves to suffer for awareness, but Ruth’s video is definitely worth watching and sharing.)

talledschick:

#ALS #icebucketchallenge #chronicillness #invisibleillness #eds #crps #raynauds #lupus #CFS #FMS #fibromyalgia #fundraising #awarness #illness #challenge #learnmore #ehlersdanlossyndrome #thinktwice

For example This Video in which a woman with dysautonomia does the ice bucket challenge, bravely, to show us what temperature change like that can do to someone with POTS. (Postural Orthostatic Tachycardia Syndrome.) In the video, the ice causes her to pass out, and have a seizure, which is pretty frightening to watch, and which her husband says happens 6-7 times per day normally. 
Her video very clearly raises the awareness for both ALS and POTS! 
(Not that I in any way advocate for the rest of us who have problems with ice buckets to cause themselves to suffer for awareness, but Ruth’s video is definitely worth watching and sharing.)

(via eenymeenypia)

Comments
Aug29

vaporware-femme:

stimmyabby:

people complain about people “faking disabilities”
you know what happens way more often than people faking disabilities?
people pretending not to be disabled so they won’t get treated like shit

so they won’t lose their jobs

their relationships

so they won’t be abused or beaten

so they won’t be denied access or care

so they won’t be killed.

or they have internalised what society has told them for so long. what their peers have told them. what their loved ones have told them. i am not sick enough to warrant help. it’s not worth it. i don’t need help. if i need help, i am weak, and there is something wrong with me on the inside that makes me bad. that makes me less.

or they have tried to get help, and it’s failed. the people around them have been untrustworthy, the medical community has been untrustworthy, they don’t have insurance or the money to get proper care or continuing care, they need the job they have because they have to support their family. a lot of disabled people are poor. are homeless.

i don’t know a single human being who wishes that they had a crippling disability. but i know a whole lot of people who fear for their very lives to speak out about what’s disabling them.

(via paradife-loft)

Comments
Aug26

People with power wheelchairs- how do you deal with getting through rain? I just moved to Tucson and it’s the end of monsoon season, which means there was a big flash flood and the roads get totally filled with running water a foot+ deep for at least an hour or so, and if you need to cross streets in your wheelchair to get to your car, what do you do? Is it safe to go through that much water with a power chair? Today was okay because I managed to get to a garage that my dad could pick me up in, but he’s leaving tomorrow, so I don’t have any idea how to handle that situation on my own. Ideas?

disability monsoon season wheelchairs power wheelchair

Comments
Aug26

I think Tucson seems to have a high disability population, which is kind of awesome (compared to living in a place with a low percentage of people with visible disabilities, anyway.) So far in 3ish days I’ve seen 1 other person in a power wheelchair, 8 different people in manual wheelchairs (6 of them my age-ish,) 1 girl with a cane, 2 people with service dogs, and 2 people in scooters (both young people.) 

it's great because then it's not an out of place thing and no one stares at you in public or asks you your whole life story when you're just trying to check out at the store repost from my other blog

Comments
Aug22

nvllify:

Please please please stop saying things like “If I had a physical illness instead of a mental one you’d take me seriously!” or literally anything to that effect. 

This is a really common misconception but I have no idea where it comes from as the reaction pretty much all chronic illnesses get, mental or physical, tend to be roughly the same. Some illnesses have more stigma  or are treated with more ableism than others, yes, but as general categories the way they’re treated are the same.

I’ve gotten the exact same comments about both my mental and physical health, including

  • Aren’t you too young to have that?
  • Are you sure those meds wont turn you into a zombie?
  • Did you try yoga?
  • Have you tried sleeping better?
  • Try this diet it’ll totally make you better! 
  • I’m pretty sure thats not a real thing
  • You’re just using that as an excuse
  • no, you’re just lazy/[insert ableist slurs here]. 

Additionally, I’ve been physically sick literally over 5 years and do not have any diagnosis, which is not uncommon. Being physically ill is not some magical difference from being mentally ill where doctors suddenly aren’t ableist towards you, know exactly how to diagnose you, and do so immediately.

Its also not a magical land where people take you seriously, ever. Believe me. I can’t even count the number of times I’ve been told I’m too young to be chronically ill, and I’ve been chronically ill since I was 13 so its like, clearly it can happen a lot younger than 18. and yet I get those comments constantly anyways. 

if you’re mentally ill but otherwise abled PLEASE don’t make these kinds of statements anymore because its just not true. They WOULD and they DO act the exact same ways to ppl who are physically ill. unless you’ve had experience being treated as both physically and mentally ill please stop comparing the two as if you have any idea what its like. you clearly don’t because no, it wouldn’t be different if you were physically ill. it wouldn’t be different at all. 

#ableism #medication 

(Source: n-ll, via paradife-loft)

not to shame anyone with mental illnesses who have said this but having a physical illness isn't really magically better to society mental illness is still getting over the 'shouldn't you be institutionalized' stigma but physical illnesses never seem to get past the 'you're not really sick/it's just diet/you're useless to society' society is just ableist in general i think i'll have more trouble getting jobs because i show up in a wheelchair than because i have anxiety on record or making friends at parties because people don't think disabled people are real people

Comments
Aug21

allonsymiddleearth:

image

Tumblr just recommended one of my own blogs to me. You’re right tumblr, it is a wonderful blog.

this just happened on the dash of my other blog best i'm laughing so much

Comments
Aug20

stimmyabby:

people complain about people “faking disabilities”
you know what happens way more often than people faking disabilities?
people pretending not to be disabled so they won’t get treated like shit

(via stevenuniversequartz)

ableism

Comments
Aug19

little about the united states healthcare overpricing is more individually frustrating to me than the fact that they often charge $100-$200 to give you a CD of your own imaging if you end up needing more than whatever they designate is the number they feel it’s appropriate to give you, which is usually one and sometimes two CDs if your lucky.

my neurosurgeons keep stealing my imaging i might apply to TCI again but i need Dr. Long to give me my imaging back first *sigh* there should be a limit on the pricing though like there's no way it costs you near that much for anything like how they can't deny you paper medical records but they can charge you a small legal max amount per page which is also ridiculous but like at least most people can afford 15 cents a page i get 2-3 imaging tests a year and i can't afford to buy them all

Comments
Aug18

chronicillnessmemes:

chronicillnessproblems:

Instead of Dairy Queen I want to make a Non-Dairy Queen and have all the same stuff but completely dairy free for lactose intolerances, dairy allergies, and vegans. 

(Plus you could totally probably do that with parody laws, yeah? That’s actually a thing, right?)

Would you put a franchise up on Spoonie Island? (Once Spoonie Island exists anyway.)

Absolutely! And we’ll have room service delivery for people who can’t get out that day, and online allergen menus. (and gluten free, egg free, nut free etc. options with strict no cross contamination policies.)

Comments
Aug18

Instead of Dairy Queen I want to make a Non-Dairy Queen and have all the same stuff but completely dairy free for lactose intolerances, dairy allergies, and vegans. 

(Plus you could totally probably do that with parody laws, yeah? That’s actually a thing, right?)

lactose intolerance dairy allergies vegan

Comments
Aug18

chronic-cuteness said: I miss Tucson! I hope you like the area. I don’t have any information on doctors there, though.

I’m so excited to live there! I only visited for a little over 24 hours when I was looking at schools, but the area’s just beautiful and everyone I met was awesome. Plus, Arizona weather! 

chronic-cuteness

Comments
Aug17

tcfkag answered: Do you have a specialist in the area? Get a rec from them? That’s usually a good strategy.

I don’t :/ I’m moving there for college from Maryland, and none of my doctors here have any idea about doctors out there.

tcfkag thank you though!!

Comments
Aug17

Does anyone know of any good primary care doctors in Tucson?

I don’t need one that’s actually heard of my conditions, (though one that has heard of ehlers-danlos would be nice) but one that is generally knowledgeable and not dismissive of chronic illness is all I’m looking for. 

I was thinking I might have a bit of time to find one and just deal with shitty campus health center for a bit but… somewhat scary GI things happened tonight so I’m starting to think I should find one ASAP before I end up having my only option be urgent care if this happens again/gets worse.

chronic illness tucson tucson az TMI warning in this tag: all the sudden blood in stools and black stools wtf body cause i've been on anti-inflammatories for like 4 years so i've been somewhat worried about ulcers and signs of them is not good ehlers danlos syndrome eds

Comments
Aug17

Reminder to all the disabled kids going back to school ~

allismyells:

Your best is always, always enough — even if what “your best” is changes daily due to energy/spoon loss, etc!

Your health is important, please take care of yourselves. ❤

(via withthesecinderedbones)

Comments
Aug13

i love the last line i mean this image could be taken of so many of us tw: ableism ableism disability wheelchairs

Comments